Alpha-1 Association
The Alpha-1 Association is a nonprofit membership organization founded in 1991. Their mission is to identify those affected by Alpha-1 Antitrypsin Deficiency and to improve the quality of their lives through support, education and advocacy.

Patient information, support group locator (by zip code), professional information, news, research information

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Alpha-1 Foundation
The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1. The majority of the Board of Directors is either diagnosed with Alpha-1 or is a family member of an individual diagnosed with Alpha-1.

Patient information, patient advocacy, professional information, research information

Created: 05-25-05 MG
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AlphaNet
AlphaNet is devoted to improving the lives of individuals with Alpha-1 antitrypsin deficiency through comprehensive disease management services, clinical research administration, and consultative services. The organization also funds research and community activities.

AlphaNet

• Was founded by Alphas
• Is run by Alphas
• Employs Alphas
• Provides services to Alpha

Patient information, patient advocacy, patient support

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American College of Allergy, Asthma and Immunology
The Allergy, Asthma & Immunology Online, is an information and news service for patients, parents of patients, members, the news media, and purchasers of health care programs.

Patient information, professional information, news

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American College of Chest Physicians (ACCP)
The American College of Chest Physicians (ACCP) is a medical society of physicians, surgeons, and allied health professionals, who specialize in diseases of the chest.

Patient education, professional information

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American Association for Respiratory Care
The AARC is a professional association representing more than 36,000 members. Members include respiratory therapists, nurses, physicians, pulmonary laboratory technicians, home health providers, home medical equipment suppliers, industrial sales representatives, manufacturers of respiratory care equipment, and respiratory patients.

For more than 50 years, the AARC has led the respiratory care profession in science, education and research. Its members are committed to providing exemplary respiratory care and improving lung health worldwide

Professional information, patient information, patient advocacy, news

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American Lung Association
The American Lung Association® provides information that is aimed at fighting lung disease in all its forms, with special emphasis on asthma, tobacco control and environmental health.

Patient information, family information, patient advocacy, professional information

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American Society of Anesthesiologists
The American Society of Anesthesiologists is an association of physicians organized to raise and maintain the standards of the medical practice of anesthesiology and improve the care of the patient.

Patient information, family information, professional information

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American Thoracic Association
The American Thoracic Society, members help prevent and fight respiratory disease around the globe through research, education, patient care, and advocacy. The Society's long-range goal is to decrease morbidity and mortality from respiratory disorders and life-threatening acute illnesses.

Patient information, professional information, news

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Area Agencies on Aging
The site is designed to provide a comprehensive overview of a wide variety of topics, programs and services related to aging. Whether you are an older individual, a caregiver, a community service provider, a researcher, or a student, you will find valuable information provided in a user-friendly way.

Patient information, family information, professional information, service resource for older adults

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Center for Disease Control
The Centers for Disease Control and Prevention (CDC) is recognized as the lead federal agency for protecting the health and safety of people - at home and abroad.
CDC focuses on disease prevention and control, environmental health, health promotion, and education. The goal of the CDC is to improve the health of the people of the United States.

Patient information, professional information, research information, news

Created 05-25-05 MG
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Clinical Trials
ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers.

ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. There are clinical trials for COPD, Alpha 1.

Patient information, professional information

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COPD Alert
COPD-ALERT is a nonprofit internet-based support and advocacy group for COPD patients, caregivers, medical professionals, and all those who care. Membership extends to nearly all states and to several foreign countries.

Patient information, professional information, patient advocacy, support group

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Eldercare Locator
The Eldercare Locator connects older Americans and their caregivers with information on senior services.

The Eldercare Locator is designed to help older adults and their families and caregivers find their way through the maze of services for seniors by identifying trustworthy local support resources.

Whether an older person needs help with services such as meals, home care or transportation, or a caregiver needs training and education or a well-deserved break from caregiving responsibilities, the Eldercare Locator is there to point that person in the right direction.

Patient information, family information, professional information

Created: 05-25-05 MG
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Emphysema Foundation for Our Right to Survive (EFFORTS)
EFFORTS. is a nonprofit organization dedicated to the support of individuals who suffer with Emphysema, a Chronic Obstructive Pulmonary Disease (COPD).

EFFORTS is intended for information purposes only so as to provide you with information for the management of your health with your doctor and to let you know what actions and research are on-going.

Patient information, family information, support group, patient advocacy, professional information

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Global Initiative For Chronic Obstructed Pulmonary Disease (GOLD)
GOLD’s is a worldwide professional organization that’s goal is to bring an awareness of lung disease in all countries.

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Prescription Drug and Other Assistance Programs
Provides information on public and private programs that offer discounted or free medication, programs that provide help with other health care costs, and Medicare health plans that include prescription coverage. It also provides information on even more ways you can reduce your prescription drug costs, such as by using generic alternatives

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National Emphysema Foundation
The National Emphysema Foundation mission is to improve the quality of life of patients with emphysema, asthma or related lung diseases with information and education for families.

Patient information, family information, professional information, patient advocacy

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National Emphysema Treatment Trial (NETT)
The National Emphysema Treatment Trial (NETT) is a resource for the evaluation of lung volume reduction surgery for emphysema. A secondary objective is to develop criteria for identifying patients who are likely to benefit from the procedure.

Patient information, clinical treatment trial center map

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National Heart Lung and Blood Institute
The National Heart, Lung, and Blood Institute (NHLBI), provides leadership for a national program in diseases of the heart, blood vessels, lung, and blood; blood resources; and sleep disorders. Designed for health professionals and the public.

Patient education, family education, interactive presentations, news

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National Lung Heath Education Program
The National Lung Health Education Program (NLHEP), is a new healthcare initiative designed to identify and to treat patients in the early stages of emphysema and related chronic bronchitis. NLHEP is directed to both primary care physicians and to patients.

Patient information, professional information

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Pulmonary Education Research Foundation (PERF)
PERF is a small, but vigorous and dedicated Foundation to provide help for patients with chronic respiratory disease through education and research.

Patient information, professional information, news,

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US COPD Coalition
The US COPD Coalition brings together health professional organizations, patient organizations and foundations, individuals, and government agencies working to improve the lives of people with COPD.

Patient information, professional information, patient advocacy

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